Giving Back During Childhood Cancer Awareness Month

Give Back During Childhood Cancer Awareness Month

Give Back During Childhood Cancer Awareness Month

September is Childhood Cancer Awareness Month. Even if you donate regularly to a childhood cancer foundation like Princess Nora's Warrior Foundation, there are always more ways we can impact healthcare and resources available to families impacted by childhood cancer. Here are a few ways you can help us give back during childhood cancer awareness month.

Giving Back During Childhood Cancer Awareness Month

Donate

The U.S. government only provides 4% of national funding to childhood cancer. Private foundations like ours are necessary in providing adequate support to families and research trials. Every donation counts! If you are able to give back during childhood cancer awareness month, we encourage you to help support our cause and appreciate each and every donation. You can donate by purchasing items from our shop or sending a one time donation.

Purchase Nora’s Warriors Merch

You can also give back by purchasing Princess Nora's Warrior Foundation Merchandise from our shop. Proceeds from every item go towards donation efforts. You can purchase any of our products for personal use or you are welcome to buy a selection of items and donate them to your families in need at a local children’s hospital near you.

Volunteer

Join us at upcoming events and sign up as a volunteer. Fill out our volunteer form & make sure to include your address so we can mail you an information packet!

Host an Event

Do you want to host a fundraising event with Princess Nora's Warrior Foundation? Get in touch and we can get the event organized!

Join the 5k

This month we are hosting the first annual Nora's Warriors 5k. Join us in person, virtually, as a sponsor or as a volunteer. We look forward to seeing you on September 24th!

Purchase a T-shirt ahead of time & we ship directly to you:

 

Become an Advocate for National Brain Tumor Society

 

 

Join us in becoming advocates for the National Brain Tumor Society. Find out how by visiting their website: www.braintumor.org

Call Your Local Representatives About Funding for Childhood Cancer

Arkansas Governor, Asa Hutchinson recently signed a proclamation to recognize September as Childhood Cancer Awareness Month. If your state does not have such proclamation, one can be requested. Find out more about your state by contacting your local representatives: https://www.house.gov/representatives/find-your-representative

Sign the petition

As we continue to address the funding issues occurring in childhood cancer healthcare & progress, we never stop fighting for more federal recognition and funding towards the increasing rates of childhood cancer. Sign the petition now to increase federal funding: change.org

Share our posts

Spread the word that it is September and encourage your community to give back during childhood cancer awareness month! Sharing our posts helps us make a bigger impact and we appreciate your support! Hit the share button or follow us on social media.

DIY Back to School Snacks

At Princess Nora’s Warrior Foundation, we want to honor all the hard work behind the families impacted by childhood cancer. We recognize that life does not slow down when your family is impacted by cancer so we want to make sure to provide opportunities for enrichment and joy. As we become more dedicated to this cause, we want to share what we can to support you through the different seasons of life. Right now, many of your kids are returning to school and you may be looking for some lunchbox and after school snack ideas. Check out this list of 50+ DIY Back to School Snacks to get your lunchbox inspiration going! 

You can help us make an impact today. Make a donation or purchase Nora’s Warriors Back To School Supplies.

  • Black Lunch Bag
    Black Lunch Bag
    $33.63
  • Black Polyester Lunch Bag
    Black Polyester Lunch Bag
    $32.67
  • Pink Lunch Bag
    Pink Lunch Bag
    $33.63
  • Black Spiral Notebook - Ruled Line
    Black Spiral Notebook – Ruled Line
    $12.82
  • Pink Spiral Notebook - Ruled Line
    Pink Spiral Notebook – Ruled Line
    $12.82
  • Pink Polyester Lunch Bag
    Pink Polyester Lunch Bag
    $32.67

50+ DIY Back To School Snack Ideas

Cakey Blueberry Protein Muffins
Light and tender these blueberry protein muffins make the perfect post-workout snack. With 14 grams of protein per serving, these high-protein muffins are sweetened with just a hint of maple syrup and fresh blueberries.
Check out this recipe
Vegan Banana Chocolate Chip Muffins (GF)
These vegan banana chocolate chip muffins are refined sugar-free and gluten-free. They’re fluffy, flavorsome and make the perfect weekday snack. 
Check out this recipe
Chocolate Sweet Potato Muffins
These rich chocolate sweet potato muffins may be healthier than other chocolate muffins, but they definitely don’t taste like it. Delicious double chocolate muffins with both cocoa powder and chocolate chips. Plus mashed sweet potato which adds richness and moisture, making these muffins taste almost like cake
Check out this recipe
Chocolate Peanut Butter Muffins – Live to Sweet
These delicious Chocolate Peanut Butter Muffins are soft and moist double chocolate muffins with peanut butter streusel!
Check out this recipe
Chocolate Peanut Butter Muffins - Live to Sweet
Homemade Fresh Strawberry Chocolate Muffins: Easy and So Delicious!
Treat your loved ones to these homemade fresh strawberry chocolate muffins. Our easy recipe is perfect for breakfast, brunch or dessert.
Check out this recipe
Homemade Fresh Strawberry Chocolate Muffins: Easy and So Delicious!
Butterscotch Banana Muffins – Live to Sweet
These Butterscotch Banana Muffins are soft, moist banana muffins with butterscotch chips! A fantastic recipe using overripe bananas!
Check out this recipe
Butterscotch Banana Muffins - Live to Sweet
Hash Brown Egg Breakfast Muffins for Kids
These Hash Brown Egg Breakfast Muffins are perfect for busy mornings. They are easy to make, and the muffin cups can be customized with your child’s favorite
Check out this recipe
Hash Brown Egg Breakfast Muffins for Kids
Savoury Vegetable Muffins
These irresistible savoury vegetable muffins are packed with flavour thanks to Cheddar cheese, sage, garlic, cumin and plenty of vegetables. They’re perfect to make at the weekend and then enjoy in packed lunches.
Check out this recipe
Savoury Vegetable Muffins
ABC Muffins (Apple Banana Carrot)
These ABC Muffins (Apple, Banana and Carrot) are moist and delicious and full of sneaky fruits and vegetables.
Check out this recipe
Healthy Zucchini Muffins
Healthy Zucchini Muffins are fluffy, moist, packed with warm flavors, and loaded with tons of zucchini (kid’s won’t even know it’s in there). Made with wholesome ingredients and makes the perfect snack or breakfast treat!
Check out this recipe
BANANA ALMOND FLOUR MUFFINS
These are the tastiest banana almond flour muffins! Healthy, gluten-free and easy to make in 35 minutes.
Check out this recipe
PEAR MUFFINS
These pear muffins are light, moist and delicious. With wholemeal flour and not to much sugar they are a healthyish treat the whole family will love.
Check out this recipe
Brown Butter Pretzel & Cereal Bar Treats
These 5-ingredient no-bake Brown Butter Pretzel and Cereal Bar Treats are chewy, salty, and sweet. This kid and adult-friendly dessert has easy ingredients and is ready in just 10 minutes.
Check out this recipe
Healthy Apple Oatmeal Bars
These Healthy Apple Oatmeal Bars are a wholesome and filling breakfast or snack. Packed with warm fall flavors, fiber and naturally sweetened, these bars are perfect for taking your oatmeal on the go!
Check out this recipe
Healthy Granola Bars (No Bake)
This Healthy Granola Bar Recipe is packed with nutrition, flavor, and wholesome ingredients. Perfect for on-the-go snacking and will satisfy your sweet cravings!
Check out this recipe
Savory Granola Bar Recipe: Cheesy Sun-Dried Tomato Pizza Bar
These savory granola bars taste like pizza – but are made with wholesome ingredients! They're cheesy and crunchy, super satisfying, and easily portable.
Check out this recipe
No Bake Energy Bites
No-bake energy bites are super easy to make and packed full of nutrition. With a nutty chocolatey flavor, they strike the perfect salty sweet balance. This great make ahead recipe is the perfect after school snack on a busy day!
Check out this recipe
Buggy Fruit Kabobs for Kids
Looking for a healthy fun snack for a party or for a special treat for the kids? These fun, buggy fruit kabobs for kids are the perfect solution! They look spectacular yet are easy to make for fruit-filled snacks your kids will gobble up!
Check out this recipe
Easy Oatmeal Cookie Recipe (without butter!)
This Oatmeal Cookie Recipe without butter will absolutely surprise you! These cookies are perfectly chewy and just slightly crisp around the edges. They’re finished with a sprinkling of sea salt for the perfect bite!
Check out this recipe
Breakfast Cookies
Finally a cookie you can eat for breakfast and feel great (5g protein)! These Breakfast Cookies are deceptively tasty but vegan & gluten-free.
Check out this recipe
Breakfast Cookies
Oatmeal Cookies With Blueberries & Peach | GF, V
These healthy oatmeal cookies are full of juicy fruits (blueberry & peach) and maple flavor, with a crispy crust and chewy inside.
Check out this recipe
Oatmeal Cookies With Blueberries & Peach | GF, V
4 Ingredient Banana Oatmeal Cookies
These easy banana oatmeal cookies are essentially baked oatmeal bites, making them a healthy snack your kids will happily eat.
Check out this recipe
4 Ingredient Banana Oatmeal Cookies
No-Bake Cookie Dough Bars (Vegan & Gluten-Free)
These are the BEST cookie dough bars you will ever try! Made with just six ingredients, they’re an easy no-bake treat to satisfy any sweet tooth. Plus, they're vegan, gluten-free, soy-free, nut-free, and oil-free so they're a healthy, allergen-friendly, feel-good treat.
Check out this recipe
Eggless Chocolate Chip Mug Cookie (Vegan)
Treat yourself with this vegan chocolate chip mug cookie that is also eggless & oil-free! Made in the microwave, this decadent dessert is ready in 5 mins.
Check out this recipe
Eggless Chocolate Chip Mug Cookie (Vegan)
No-Bake Peanut Butter Cups – Plant-Based on a Budget
These No-Bake Peanut Butter Cups are delicious! If you like chocolate, you’re going to love how rich and tasty these chocolatey treats are!
Check out this recipe
No-Bake Peanut Butter Cups - Plant-Based on a Budget
Soft Granola Bars with Apricot & Walnuts
These Soft Granola Bars are perfect for snacking and are great for an after school treat. So delicious they’ll become your new fruity favorite
Check out this recipe
Homemade Applesauce
This Homemade Applesauce Recipe is made with just 5 simple ingredients and is ready in just over 30 minutes. Make a big batch and enjoy this easy and delicious applesauce recipe as a yummy snack or alongside more savory lunch box mains.
Check out this recipe
Cheese Crackers
Homemade Cheese Crackers are made with only 4 simple ingredients and tastes even better than store-bought Cheez-its! They are crunchy and buttery with a sharp cheddar cheese flavor. These crackers are perfect for lunch boxes or take them as a to-go snack!
Check out this recipe
Homemade Gluten-Free + Vegan Goldfish (Allergy-Free, Grain-Free)
Nothing says childhood more than Goldfish crackers! Now you can make your own Homemade Gluten-Free & Vegan Goldfish that are top 8 allergy-free, grain-free, sugar-free, and secretly protein-packed! A healthy snack recipe mom's and kids will love!
Check out this recipe
Rosemary Vegan Crackers – Plant-Based on a Budget
These crunchy little rosemary crackers will fill your house aroma as they bake. They’re perfect to munch on by themselves or with dip.
Check out this recipe
Rosemary Vegan Crackers - Plant-Based on a Budget
Homemade Gluten-Free Wheat Thins (Vegan, Allergy-Free)
Wheat-Free Wheat Thins? This Homemade Gluten-Free Wheat Thins recipe is a celiac-safe copycat of Nabisco's classic whole-grain cracker! This quick & easy healthy snack is vegan, allergy-free, and kid-friendly. Great for plain snacking, pairing with soups or salads, and topping with dips and spreads!
Check out this recipe
Homemade Gluten-Free + Allergy-Free Uncrustables (Vegan)
Just what the little picky eaters want! Homemade Gluten-Free + Allergy-Free Uncrustables! A school-friendly, top food allergy-friendly, vegan, and gluten-free version of the packaged "PBJ crustless pocket" sandwich! Make these ahead of time for a quick and easy lunch recipe or snack for the entire school week!
Check out this recipe
Homemade Spaghetti O’s (Allergy-Free, Gluten-Free, Vegan)
Kick the can and make this healthy recipe for the kids instead! Homemade Spaghetti O's that are allergy-free, gluten-free, and vegan! A super easy lunch or dinner that's kid-friendly and mom-approved!
Check out this recipe
Healthy Baked Chicken Nuggets
They're a favorite you know and love, except these are made from scratch and are so much healthier with some hidden added nutrition! These Healthy Baked Chicken Nuggets are everything you want in a homemade chicken nugget but oh so much more! They're flavorful, they're crunchy, but they're also not deep-fried, and are still great to store in the freezer!
Check out this recipe
Protein Snack Pack – Easy Lunch Meal Prep
Protein Snack Packs filled with hard-boiled eggs, almonds, hummus, and crunchy veggies. An easy and delicious lunchtime meal-prep solution perfect for any protein lover, these fantastic little protein snack packs are perfect for school lunches
Check out this recipe
ULTIMATE SNACK TRAY IDEAS (FOR LUNCH OR DINNER)
Here are some easy and healthy snack tray ideas you can put together FAST with whatever you have on hand. These are especially perfect for toddlers and kids. Serve for after school snacks or as a snack lunch or dinner!
Check out this recipe
Healthy Chex Mix
This healthy Chex mix is a crunchy, flavorful snack mix made with Chex cereal, multigrain Cheerios, whole grain Goldfish crackers, pretzels and nuts.Add popcorn if you'd like! It's the best healthy snack mix, ever!
Check out this recipe
Apple Granola Topped Goodness
Get your snack on with Apple snacks! Topped with granola and melted chocolate, it’s the perfect sweet snack to munch on!
Check out this recipe
Apple Granola Topped Goodness
Healthy Strawberry Gummies (Homemade Fruit Snacks) | Maple + Mango
Learn how to make healthy strawberry gummies with real fruit. Chewy, addictive little treats that both kids and adults will love!
Check out this recipe
Healthy Strawberry Gummies (Homemade Fruit Snacks) | Maple + Mango
Sweet Potato and Apple Fruit Leather
Fruit leather is a great treat that is simple to make. Vegetables can be added, too, like this sweet potato and apple combination!
Check out this recipe
Sweet Potato and Apple Fruit Leather
Chocolate and Yogurt Fruit Dip Recipe
Get out of your after school snack rut with this easy fruit dip recipe! You won’t believe how easy (or delicious) this Chocolate and Yogurt Fruit Dip is!
Check out this recipe
Chocolate and Yogurt Fruit Dip Recipe
Nut Free Trail Mix
Your kids will love this easy to make (and allergy friendly!) Nut Free Trail Mix. You'll want to make a double batch.
Check out this recipe
Healthier Pumpkin Banana Bread Recipe – apaigeofpositivity
Celebrate fall with Healthier Pumpkin Banana Bread! Made with Greek yogurt, it’s incredibly moist and rich and packs a little extra protein.
Check out this recipe
Healthier Pumpkin Banana Bread Recipe - apaigeofpositivity
Sweet Potato Fritters (Latkes) For Babies & Toddlers – ThrivingNest
These sweet potato fritters make the perfect finger food for babies 8 months+ (baby led weaning), toddlers and older kids.
Check out this recipe
Sweet Potato Fritters (Latkes) For Babies & Toddlers - ThrivingNest
Ham and Cheese Roll Ups (Easy Party Appetizer!) – Little Sunny Kitchen
Ham and Cheese Roll Ups are the easiest appetizer recipe and perfect for parties, game day, or even as a quick lunch. Just 5 simple ingredients are needed.
Check out this recipe
Ham and Cheese Roll Ups (Easy Party Appetizer!) - Little Sunny Kitchen
Tuna Pinwheels
These veg-packed tuna pinwheels are perfect for school lunchboxes! They’re made with canned tuna, canned chickpeas, cucumber, peppers, tomatoes and cream cheese, all rolled up in a tasty tortilla wrap and cut into bite size slices.
Check out this recipe
Tuna Pinwheels
Meatball Pita Pockets
Meatball Pita pockets are easy to make in 10 minutes and just 5 ingredients. Great for back to school, lunch boxes, a main dish or appetizer!
Check out this recipe
Meatball Pita Pockets
Air Fryer Sausage Rolls
Air Fryer Sausage Rolls are the perfect 4 ingredient snack, party appetizer or lunch box option and they cook in just 10 minutes.
Check out this recipe
Air Fryer Sausage Rolls
Air Fryer Burrito
Cook up an air fryer burrito in minutes that is tastier than takeout. You’ll love this easy restaurant-style burrito in air fryer recipe.
Check out this recipe
Air Fryer Burrito
How to Make Dried Apple Rings in the Oven : Ugly Duckling Bakery
These dried apples are as sweet as candy but have no added sugar. Perfect for an afternoon or after-school snack.
Check out this recipe
How to Make Dried Apple Rings in the Oven : Ugly Duckling Bakery
How to Make Unsweetened Strawberry Applesauce : Ugly Duckling Bakery
Fresh strawberries add natural sweetness to unsweetened strawberry applesauce. Enjoy it with yogurt or waffles or just eat it with a spoon!
Check out this recipe
How to Make Unsweetened Strawberry Applesauce : Ugly Duckling Bakery
Hungry Hippos (Fun Sandwich Recipe for Kids)
This fun sandwich recipe is an edible art project, or a special lunch box surprise! Choose basic peanut butter and jelly, or one of our nut-free options!
Check out this recipe
Hungry Hippos (Fun Sandwich Recipe for Kids)
EASY Peanut Butter and Jelly Energy Balls
PB&J just got less messy (and totally portable)! These Peanut Butter and Jelly Energy Balls are easy, healthy snacks that taste like a PB&J sandwich. They freeze well, too – great for stocking up!
Check out this recipe
EASY Peanut Butter and Jelly Energy Balls
Healthy Apple Chai Bars
These Healthy Apple Chai Bars are cozy with chai concentrate and roasted apples. These are perfect as a healthy snack, breakfast, or dessert!
Check out this recipe
Healthy Apple Chai Bars
Double Chocolate Coconut Macaroons Recipe – Refresh My Health
If you love chocolate and coconut, these crunchy chocolate coconut macaroons might be your thing. Low-carb and keto approved, … and healthy!
Check out this recipe
Double Chocolate Coconut Macaroons Recipe - Refresh My Health
Sesame Pekmez Cookies (Easy 3-Ingredient Dessert) ⋆ Earth to Veg
These gorgeous 4-ingredient cookies, made with tahini, almond flour, and Turkish molasses, are the perfect dessert for a stay-at-home Valentine’s dinner!
Check out this recipe
Sesame Pekmez Cookies (Easy 3-Ingredient Dessert) ⋆ Earth to Veg
Healthy Homemade Fruit Roll-Ups – Only 2 Ingredients!
These homemade fruit roll ups are made with real fruit and easy to make! Only 2 ingredients and no added sugar!
Check out this recipe
Healthy Homemade Fruit Roll-Ups - Only 2 Ingredients!
Crunchy Roasted Chickpeas
A healthy alternative to chips, your kids will love these crunchy roasted chickpeas snack! Easy to make and delicious, lightly salted.
Check out this recipe
Crunchy Roasted Chickpeas
Rainbow Frosted Grapes
Vibrantly colored Rainbow Jello Frosted Grapes are as pretty as they are delicious! This party treat is sure to be a hit with both kids and grown-ups alike!
Check out this recipe
Rainbow Frosted Grapes
Recipe This | Dehydrated Marshmallows In Air Fryer
The ultimate guide to dehydrated marshmallows in the air fryer. If you want to dry marshmallows and have a dehydrator setting on your air fryer, then this…
Check out this recipe
Recipe This | Dehydrated Marshmallows In Air Fryer
Recipe This | Air Fryer Healthy Flapjacks Recipe
Are you ready for my air fryer healthy flapjacks recipe? Delicious pieces of heavenly healthy flapjacks that are gluten free, made with healthier sugars and so addictive this will become your new air…
Check out this recipe
Recipe This | Air Fryer Healthy Flapjacks Recipe
Strawberry Banana Breakfast Bars – Easy Recipe and Freezer Friendly! –
Strawberry Banana Breakfast Bars These strawberry banana breakfast bars are a delicious breakfast or snack that’s perfect for the whole family. Super easy to make, these bars are freezer friendly and perfect for meal prepping
Check out this recipe
Strawberry Banana Breakfast Bars - Easy Recipe and Freezer Friendly! -
Healthy Flourless Oatmeal Cookie Bars – The Nessy Kitchen
Indulge your next cookie craving with these GF, naturally sweetened Oatmeal Cookie Bars! Customize the add ins for whatever flavour you want!
Check out this recipe
Healthy Flourless Oatmeal Cookie Bars - The Nessy Kitchen

The Princess Post: Issue 3

WOW!! We have had a busy summer! In August, we became members of the Hot Springs Chamber of Commerce and participated in a ribbon cutting ceremony. We also packed backpacks with school supplies for our warriors currently fighting cancer and their siblings. These backpacks were delivered to Arkansas Children’s Hospital to be given out.

We are gearing up for one of our big events…Princess Nora’s Warrior 5k. The outpouring of support and generosity from our annual and event sponsors has been amazing. We are so thankful to all of the people and businesses sponsoring our events. We are so excited for this event and hope to see you there. We are still in need of volunteers, so if you would like to help, please sign up and join us. Thank you for your continued support!

Princess Nora’s Warrior Foundation has recently partnered with Solving Kids Cancer (SKC) to assist in funding the first clinical research trial for ETMR! We have raised $25,000 to donate towards this effort. These funds will be used in conjunction with funds from SKC to fully fund this ETMR research grant.

September is Childhood Cancer Awareness Month! Go gold for September!

Upcoming events

September 24th: Princess Nora’s Warrior 5K at Lake Hamilton High School

October 22nd: 8 am-2pm CE Program for RNs and APRNs at New Life Church-Hot Springs

Past Events:

Governor Hutchinson has proclaimed September as Childhood Cancer Awareness Month.

Hot Springs Chamber of Commerce Ribbon Cutting

Backpacks for ACH

A special shout out to our sponsors:

Meseke Agency-Farmers Insurance

Noelle Stephens-State Farm Insurance

The Rice Family

iRealty-The Billingsley Team’

How to Give:

https://noraswarriors.kindful.com/

Text NORA to 501-441-3383

If you haven’t joined our email list, please join to receive regular princess post updates! www.noraswarriors.com/princess-post

 

princess post july 2022

The Princess Post: Issue 2

Welcome back to our latest issue of the Princess Post! Thank you so much for your interest in our foundation. We appreciate each and every follower. 

We have had a busy June!  In June, we competed in the bathtub races, were a part of the Hot Springs bike rally, held our first Chick-fil-a spirit night, and even took our Warrior ducks on adventures! 

We are currently planning our first annual Princess Nora’s Warrior 5K which will be held in September. We hope you can be a part of it; in person or virtually.  

Don’t forget to follow our social media pages at @noraswarriors or @princessnoraswarriorfoundation to find out more about what we are doing, ways to be involved, and upcoming events!

Upcoming events

September 24th:  Princess Nora’s Warrior 5K at Lake Hamilton High School

October 22nd:  8 am-2pm CE Program for RNs and APRNs at New Life Church-Hot Springs

Past Events:

Nora Boxes for ACH

Hot Springs Motorcycle Rally

Chick-fil-a Spirit Night

Did you know?

Princess Nora’s Warrior Foundation is now a member of the Greater Hot Springs Chamber of Commerce! We are proud to partner with this 5-star accredited organization to help promote our mission and vision in the community. Stay tuned for a ribbon-cutting ceremony date coming soon! You are invited!

A special shout out to our sponsors:

Meseke Agency-Farmers Insurance

Noelle Stephens-State Farm Insurance

The Rice Family

iRealty-The Billingsley Team’

How to Give:

https://noraswarriors.kindful.com/

Text NORA to 501-441-3383

If you haven’t joined our email list, please join to receive regular princess post updates! www.noraswarriors.com/princess-post

 

ways childhood cancer is underfunded

Ways Childhood Cancer is Underfunded

With childhood cancer rates on the rise, awareness and support is needed more than ever. Despite doctors and hospitals seeing more children for cancer treatment, there are many ways childhood cancer is underfunded. 

ways childhood cancer is underfunded

Cost of clinical trials

There are two types of costs associated with participating in a clinical trial: costs related to care and costs related to research. In many cases, the main treatment in a clinical trial may be provided for free by the trial sponsor but there are still additional costs required to participate. 

Some of the clinical costs might include standardized treatments, doctor visits, hospital stays, lab tests and diagnostic imaging. Many of these care and research costs may not be covered by the trial or insurance, and families often need to travel or take time off work to be able to participate. Too often, families with lower economic means end up with the highest travel related costs

4% of govt funding goes to childhood cancer

In 2021, it was estimated that there would be 10,500 new cancer diagnoses among children in the United States. Despite that, only 1-3% of all cancer diagnoses are children. Of the billions of dollars reserved for cancer research by the government, only 4% of that will go to the care, treatment, support and research for the growing number of types of childhood cancers. 

The most common types of childhood cancers include brain cancer, leukemia, cancers of the central nervous system & lymphomas. These four types make up the majority of cases seen in children with improving rates of survival among some of them. The biggest challenges occur when children develop rare forms of cancer that have no specified treatment protocols and new research methods remain slow to develop.

Too rare for research?

There are many different subtypes of pediatric cancer with some of them being very rare. When a child gets diagnosed with a rare type of cancer, there may arise a range of difficulties in receiving a diagnosis or care. According to the U.S. Rare Diseases Act passed in 2002, all childhood cancers are considered ‘rare’ because of the amount of the total population it affects. Despite that, cancer is still the top cause for childhood deaths. For every type of childhood cancer that occurs, there are hundreds of subtypes that also occur. This means that it is very difficult to acquire funding for research towards finding effective and specified treatment methods.

childhood cancer funding problems

Standardized care

When looking into treatment options for a child with cancer, the options may be limited. Since children respond differently to cancer treatments than adults do, the protocols may not be specific enough to that child’s type of cancer and is usually based on a standardized method of care. With many types of rare childhood cancers and a lack of funding for research, there are few options for families to choose from. Most options available today were approved over 30 years ago, many in the 60’s, 70’s and early 80’s. 

Unless a clinical trial is available, attainable and promising, there are only standard levels of care that many children will receive. No form of childhood cancer should be too rare to receive funding for research and better care resources.

Fundraising challenges

With only 4% of government funding for cancer research going to pediatric cancer, there are big strains on fundraising efforts among health organizations, nonprofits and state and local governments. Most health organizations do not have additional funding set aside specifically for cancer research. Incoming donations are inconsistent and mostly reliant on social & local support. These organizations experience extreme pressure on where to apply their donation funds and how to allocate it for all the ways their care and research departments need support. 

Nonprofits rely heavily on direct charitable donation from their communities, which can pose a strain on their goals to consistently support families and research efforts. It’s important that nonprofits are able to diversify their funding sources. While the small amount of government funding to cancer research has led to the development of new drugs, it’s harder to track how publicly funded research has made an impact on cancer research developments. With so little government funding going towards this important cause, it proves how much can still be done when people regularly support childhood cancer nonprofits.

childhood cancer fundraising

What about the survivors?

Once a child survives cancer, their lives may not return to normal right away, or ever. Long term health risks and illnesses may arise over their lifetime, sometimes at young ages in adulthood. Many survivors will develop chronic health problems, infertility, or other types of cancer later in life. 

While disengaging from care after survivorship can be emotionally and psychologically beneficial, there are too many long term risks the survivor might face. Aftercare an important element that should be included in all cancer treatment protocols. Depending on many factors, some patients may require more aftercare than others. 

When we consider that many patients are not given follow up care recommendations, we also need to consider that this is not accessible to every family where survivorship care is very important to the health of the child. Despite the long term benefits and importance of monitoring a child’s health in survivorship, only 68% of patients follow up with any form of long term care. The cost effectiveness of survivorship care is still under-established and underfunded. 

We Can Make an Impact on the Many Ways Childhood Cancer is Underfunded

At Princess Nora’s Warrior Foundation, we want to educate on the ways childhood cancer is underfunded and guide you through the process of supporting families in need. When you make a donation, you can leave a note indicating what you would like your gift to support. Please join our newsletter and continue reading for more information about childhood cancer and how we make an impact with our donations. 

welcome

Welcome

Welcome to the new Princess Nora's Warrior Foundation Website. Here at Princess Nora's Warrior Foundation,  we will fight for those who cannot fight for themselves, we will never let a warrior fight alone and we will never stop pursuing progress. 

Our goal is to be a voice in making childhood cancer a national priority by advocating for change in policy, supporting a broad spectrum of pediatric cancer organizations, raising awareness, advocating for research, and aiding in the improvement of quality of life for those affected today.



On behalf of Princess Nora’s Warrior Foundation, I would like to thank you for visiting our site. It is because of people like you, we can continue our mission to change the landscape of pediatric cancer. Our hopes are to be able to provide funding for clinical trials and aid families in the midst of the most trying time of their lives.  

Tiffany McConathy, Founder and mother of Nora  

 

 

 

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